SARASOTA, FLORIDA, UNITED STATES, February 21, 2018 /EINPresswire.com/ — Many Americans know have gone through pain and suffering with a family member with ALS. Anthony Barraco knows too well about this. His father has had ALS since August 2017. Because of this fact, Barraco donated $50,000 in December to the ALS Association.
ALS, known as amyotrophic lateral sclerosis and Lou Gehrig's disease, is a disease which causes the death of neurons controlling voluntary muscles. The condition has become characterized by stiff muscles, muscle twitching, and worsening weakness due to muscles decreasing in size.
There is no cure for ALS.
"It's been a challenging year for our family," says Barraco. "But we continue to hope there is a cure soon and will continue to support the ALS Association."
History Of The ALS Association
Established in 1985, the ALS Association has become the only national non-profit organization fighting ALS on every front. The association leads the way in global research, coordinating care through certified clinical care centers, and providing assistance for people with ALS.
The ALS Association builds hope and enhances the quality of life while doing what they can to search for new remedies and a cure.
Based on the United States population studies, over 6,000 people in the U.S. become diagnosed with ALS each year. That comes out to 15 new cases each day. Also, it has become estimated there are more than 20,000 Americans have the disease at any given time.
Facts Of ALS
Most people develop ALS between the ages of 40 and 70, with an average age of 55 at the time of diagnosis.
Once ALS starts, it almost always progresses, eventually taking away the ability to walk, speak, dress, swallow, and breathe. The disease shortens the lifespan quickly. How fast and in what order depends on a person to person case.
Over the past 33 years, the ALS Association has committed around $70 million for ALS research. While no cure has become found, many new breakthroughs in treatment have taken place because of this funding.
"Donating to the ALS Association means research will continue. And the support system they have set up will always be there for people like my father," adds Anthony Barraco.
The ALS Association guides the way in research, care services, public policy, and public education. These efforts give hope to those facing the disease.
The organization has become broken up into distinct chapters. These chapters service to a particular geographic area of the United States, all working under the umbrella of a national charter and administrator from the ALS Association.
The Association's nationwide network of chapters provides comprehensive patient services and support to the ALS community.
Mission Of The ALS Association
The mission of the group is to lead the fight to treat and cure ALS through global research and nationwide advocacy. Also, empowering people with the horrific disease and their families to live fuller lives by providing them with compassionate care and support.
"Just in the past several years, researchers have learned a great deal about ALS," says Barraco. "Because of donations and tissue donors, people like my father can hopefully benefit from these continuing efforts of research and care."
Not only do donors contribute to finding a cure, but they support the Association's network.
The Association's network plays a crucial role in advocating for increased public and private support. These roles hope for more response to the needs of people with ALS. Also, the organization's public policy efforts in Washington D.C. have raised the profile of ALS at the White House and Congress. In addition to various federal agencies, the FDA, and veterans service programs.
"I hope my donation helps greatly with research and caring for people like my father," concludes Anthony Barraco. "Everyday has become one step closer to finding a cure for him."
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Source: EIN Presswire